Saturday, June 12, 2021

Update on Jim Another Week

 O'Fallon, IL  (Hi 100   Lo 76)

It's hot here, but no where near Florida heat. It's really comfortable not as much humidity. I dread winter, but I'm not working and don't have to get out. 

Just want everyone to know, this is a blog of info and maybe it will help others in things going on that you wouldn't think of. I also want to have things documented for future reads and questions of what happens. 

The update from last Sunday with Jim. It's been a whirlwind and I can't put it into each day. It's all a blur. I thought I had the apartment but when I got the final application Jim wasn't on it. So I'm still working on that he has to have an application, which is $50 for EACH of us. There's law here in our county that you have to pay $10 to the city to cover emergencies and make sure there's only one person in a one bedroom and two in a two bedroom etc, (that's adults). It's put in a fund that goes to emergencies, like tornadoes and earthquakes or fire etc. It goes to help to the community in disasters. We're ready to move in on the 21st. 

I'm going to rant a bit, most people that's dealt with the hospitals and rehabs already know it's a money racket. Jim is on tons of meds. I looked everyone of them up.  It's no wonder that people are over medicated. I hate our medical system. If they know they're going to get paid, they lay it on, needed or not. I know, I'm not a doctor, but I also know some of the meds are scary and mixing them?  I'm very upset. 

The Barnes complex is enormous. There's schools for everything. The radiation area is in same building as Jim so they took him by wheelchair to get fitted for the radiation treatments. The crossbars is where the radiation will be aimed. That all starts after rehab on June 23. 

There was a few things happening during the week but nothing major, not really sure why they were keeping him so long in the hospital.  Trying to get info is like pulling teeth. As of today I finally got the final biopsy report of stage 4 Glioblastoma. They told us that from the beginning. We know what we're dealing with. 

Monday was my birthday and Jim got me some gorgeous flowers and balloon, from the hospital gift shop. They were gorgeous.

I must say the view out the window is great. That tall building in the background is Mental health clinic.
He was moved to rehab on Thursday, finally. Now I'm on a rant again. The hospital has everything possible on him from the time he arrived to the time he went to rehab, but you think they would communicate with the hospital. NO.  It took 3 hours asking me all the questions that were already in the system. I was tired and hungry and Jim was sleeping. I got back to Frank's (son) about 7:00. I'll never understand. It's been that way the rest of the week. All the meds and the reports are redone. He's doing OT (occupational therapy) PT (physical therapy) and Speech. It takes 3 hours a day. Another thing, he was given a covid test, and had to change rooms the next day and they gave him another one. What?  for overnight ?   Jim is doing speech therapy. 
                                       
While I've been staying with son and wife, Frank plays the guitar and it's a joy hearing him . 
I got to see a game of volleyball that Kendall plays. They made it to the championship round. There's still a couple more games. He's going to Campbellsville college in Kentucky on a volleyball scholarship. 
I'm leaving tomorrow, Sunday for Florida to get our "stuff". I'll be back next Saturday. It's going to be rough leaving Jim, but I really do want more clothes. He was really good in speaking to me today. If he's been resting and sleeping, he talks a lot better. Just can't talk fast then it turns to mumbling. We got a lot discussed about what to bring from Florida. 

Today (Saturday) I went to our grandson's fiance bridal shower. Angie worked all week on getting things ready. We had tacos and it was so fun. Holly and Kyle are the two getting married July 10. 
                                        Holly with her sister Faith and looking on is a friend Hunter. 

                                            Holly and Kyle opening gifts at the house. 
                                                 Cake and cupcakes for the party
                                              Tacos and all the trimmings for the party.
                                                    Pictures of the couple. 
Jim was excellent when I got up to rehab. He had rested all day and was doing very well in speaking. It made it easier to leave him. I'm sure hoping the week goes fast and the movers get our stuff to us next Monday. 

9 comments:

owensontheroad said...

So much to have to do. My heart goes out to you. My Dad wore one of those 'helmets' when he was going through radiation. Prayers for you and Jim.

Anonymous said...

Hang in there girl. What a bomb to hit you but you are handling it well. I hope your sister can help at home. Liz Stanley

Nancy and Bill said...

Thanks for the update...couldn't agree more about the medical system...but you are doing the best you can!!!! Don't forget to take care of you...so you can be there for Jim. Sometimes, you just have to back off and recoup🤗 We will keep both of you in our prayers!!!

Phyllis said...

Good to read that Jim can communicate better. It must be frustrated to him not to be able to speak as he is used to. And rant here all you want. We are listening and care.

Barb in FL said...

Hi Dee - Sorry to read of Jim's diagnosis & know what you are dealing with as my husband had to deal with all of that with his esophogeal cancer. I know how frustrating the medical establishment is. I have friends, who I am sure, were not helped by the industry at all & blame them for their deaths. I say this not to scare you but to give you some information I have found. If I would've known this back when Mark was sick, we surely would've tried it.

I would like to direct you or a family member to the website: mycancerstory.rocks It is a thread of a man's journey through his cancer diagnosis and recovery. Yes 100%! He had small cell lung cancer that was throughout his body with metastasies. He was directed to this treatment through a college message board he frequented through a friend there. Quite amazing. The scientist that figured this out (Patient 1) cured herself of her brain cancer! The information is not "out there" because it will put too many big pharma and industries out of business. Please have someone take the time to read through Joe Tippens site. It is worth a shot & what do you have to lose?

Quickly & basically the drug is fenbendezole. A DOG WORMER! It is made by Merk. It is now generic, sold as Safeguard at Tractor Supply, Rural King, online. The website and thread is full of people that have tried it & cured themselves. I have to confess that my son & I have been taking it (3 days per week - 1 gm per day) for over a year. For the reasons we started I won't go into, but as a side-note, my moles are all shrinking so I know it's doing something. It has no side affects, tastes like a chewed up aspirin, but not as bitter. For someone that has cancer, I would be sure to read the whole thread, check out the facebook page and figure out what doseage would be right for Jim. Joe Tippens uses it every day, I believe. Think about this - Ivermectin is also for parasites - now being used for covid treatment. They can't make fortunes off of this as it is now generic. And lastly, Joe Tippen didn't tell his Drs. he was trying this. He was in a drug trial at MD Anderson in TX and was the ONLY survivor. He used the fenbendezole in conjunction with his treatments.

Just for your information, and please do not post this for all to see. I pass along to people that I know it may help. If you find you want to share the information that is up to you, but please leave my name out of it. I worry if too much info goes out too fast there may be an availability problem. Plus, you have to read the thread to understand and I don't want people to think I'm a kook without reading it. We also don't want his site taken down because billionaires are losing money. Please read or ask one of the kids to read it, but don't wait too long. As with most things, early treatment has the best results and another plus, there is more hope & something YOU can DO!

Do you remember meeting me at the craft show a few years back? I am in Winter Haven so if you need my help, please call 863-956-7012 or text me. I have some boxes if you need them & can help with taking donations to be dropped off, etc.

Good luck in all that is going on Dee! I wish you all the best, will be praying for your family and send you God's blessings and a big hug. Barb Hanson

Meandering Maddi said...

Continuing to pray for the both of you!

KarenInTheWoods said...

Wow... hugs and kind thoughts and care and concern for you two. Cherish each and every minute with him. Wish there was something we could do from here to help. Love, Karen and Steve

Mark from Missouri said...

Dee thank you for the updates.

Mark

Where’s Eldo? said...

Happy to hear he can communicate. So sorry you have to deal with our nightmarish healthcare system. We are thinking of you both.

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